community impact — Blog

Ensuring a lifetime of compassionate support.

The Lifehouse Intermediate Care Facilities/ Developmentally Disabled Habilitative (ICF/ DDH) offer intensive support to individuals who may need medical, physical, or occupational therapies, ensuring that the most vulnerable people with developmental and intellectual disabilities (I/DD) are cared for and have the opportunity for joy in their daily lives.

Supporting individuals in the ICF program is particularly complex since many of the clients are non-verbal and/or wheelchair bound. Many of the Direct Support Professionals (DSP) in our ICF program have been with Lifehouse for 10-20 years. The bond that they have with the people they support is often like that of an extended family. This helps them successfully support their client’s overall mood, well-being, and enables them to provide the very best level of care. This is often difficult to discover from someone who is non-verbal, and possibly the most challenging part of supporting people in the ICF program. Being quick on ones feet, having patience, and understanding what the individual needs can often be lifesaving for these vulnerable individuals.

Anne Aguilar, the Qualified Intellecual Disabilities Professional (QIDP) Administrator of the ICF program says, “Everyone should be treated equally and have access to what they need to lead a life with dignity and opportunity. The best way I can advocate for that is working directly with the people in our community that need our help the most. It is not always easy, but the like-minded and truly dedicated people that I work with keep that inspiration alive.” Everyone in the ICF program continuously works to maintain vibrancy and harmony in their houses. The staff and the individuals supported are learning, growing together, and play an essential role in each other’s lives.

A Parent Story: Marc Elias

My son Peter was born in 1979. Although small, he seemed fine until he turned one and had his first asthma attack. Over the next 3 years he was hospitalized with asthma or pneumonia a dozen times. At the age of 4, the asthma stopped and my wife Ann and I were hopeful that he would have a healthy future ahead.

Everything changed when Peter was 5 ½ and started having headaches. He had a CT Scan that revealed a massive brain tumor in his right frontal lobe, so we prepared ourselves for Peter to go into surgery. Half of the tumor was deemed inoperable and the doctor said Peter likely had 5 years to live, with a 2 –10 year window.

We were shattered. Our world changed. It was difficult to simply take one step in front of the other. I felt helpless and felt that if we lost Peter, I would go too.

Every year since then seemed like a milestone, and it was immensely challenging. Five years turned into 10 years, and although developmentally delayed, Peter was a happy boy. It was clear though that he could not take care of himself as an adult.

As a parent of a child with developmental disabilities, finding a place like Lifehouse has been a true blessing. Under the compassionate guidance of Mike Sus and his dedicated staff, Peter has thrived in an environment that fosters independence, growth, and dignity. With the support of Lifehouse, he is active in his community and has a life of his own. This year Peter turned 45 and is thriving. Peter loves his family so much, especially his 2 sisters, his niece, and nephew.

The programs and housing that Lifehouse offers have helped Peter and so many others in our community. I am continually amazed by the unwavering commitment and passion that Nancy Dow Moody, my wife Ann Elias, and the entire Lifehouse team demonstrate in their work. Their dedication to improving the lives of individuals with intellectual and developmental disabilities is truly commendable and has made a significant difference in our family’s lives. The hard work, compassion, and dedication does not go unnoticed, and I am immensely grateful for everything that the organization does for my son and the community as a whole.